@HospitalPatient

Secondary Erythromelalgia diagnosis journey

rh-3 October 5, 2016 – “Secondary” Erythromelalgia or EM makes my hands and fingers so red that they BURN like Frostbite. EM is also referred to as “The Man on Fire Syndrome” because it literally feels as if your hands and fingers are on FIRE. It is extremely RARE and INCURABLE – at least by traditional means. Lovely.

October 7, 2016 – I have not been […]

Patient Centricity Pioneers

The group of 12 "patient leaders" brought together by a global healthcare company in July, 2015 at a beautiful rustic setting outside of Washington, DC  to contribute our respective experiences toward the establishment of a working definition of a "Patient Centricity" healthcare standard.  The group of 12 “patient leaders” brought together by a global healthcare company in July, 2015 at a beautiful rustic setting outside […]

Patient Tips re: Pain Management Medicine

This Blog Post is the third in a 3-Part Series on the Practice of Pain Medicine from a Patient's Perspective. This Blog Post is the third in a 3-Part Series on the Practice of Pain Medicine from a Patient’s Perspective.

I find this medical specialty uniquely interesting because it is experienced by patients with all sorts of different diseases, ailments and pains yet there is still no […]

Pain Medication Agreements – Devil’s in the Details

Prescription Drug Overdose

The Devil’s in the Details

The “Numbered Comments” below correspond to the Numbered Paragraphs of the Sample Compilation Pain Medicine Agreement which is posted below in “bite-sized” chunks for ease of reference.  My Contract Comments are intended strictly to point out to patients who must sign these Agreements that many of the seemingly inconsequential first-appearing Patient […]

The Patient’s Perspective re: Pain Medicine Agreements

(This the first of three (3) Posts about being a Patient in the medical specialty of Pain Management.

Post 1 – Educate Patients about the issues involved with selecting the Pain Management physician right for them;

Post 2 – I will provide comments to the clauses contained in the below Sample Compilation Pain Medicine Agreement for the purposes of […]

Bullying of Crohn’s Disease & Ulcerative Colitis patients

November 6, 2014

While I think health care social media is such a powerful, resourceful and life-changing patient medium, I can’t help but get depressed each time I check in at Facebook and review the desperate but VERY REAL posts from brave members of the various Crohn’s/Ulcerative Colitis “Groups” to which I subscribe and read about patient after patient who must “fight” simply to be treated with dignity by their own physician.  […]

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