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Erythromelalgia – How to Treat it?

If you have anything to share re: Erythromelalgia, please leave a comment below.

Thanks…

Secondary Erythromelalgia – 1st VISIBLE Environmental Disease?

oct-9-2016-environemntal-diseases

October 9, 2016

      I’m beginning to think that Secondary Erythromelalgia (EM) is akin to the body’s unregulated and grossly exaggerated “defensive” response to toxins or abnormal systemic conditions or diseases. Technically it manifests as both a neurological and vascular disorder but reversing it or medically treating it to the point where the patient is no longer handicapped by it or even free from […]

Secondary Erythromelalgia diagnosis journey

rh-3 October 5, 2016 – “Secondary” Erythromelalgia or EM makes my hands and fingers so red that they BURN like Frostbite. EM is also referred to as “The Man on Fire Syndrome” because it literally feels as if your hands and fingers are on FIRE. It is extremely RARE and INCURABLE – at least by traditional means. Lovely.

October 7, 2016 – I have not been […]

abcs of IBD, Crohn’s & Colitis

IBD = Inflammatory Bowel Disease of which Crohn's Disease and Ulcerative Colitis are the most common. IBD = Inflammatory Bowel Disease of which Crohn’s Disease and Ulcerative Colitis are the most common.

      In light of it being Inflammatory Bowel Disease (#IBD) Awareness Week, below are some quotes/comments I’ve made over the years and some I’ve come across from friends, patients, IBD parents and […]

Patient Centricity Pioneers

The group of 12 "patient leaders" brought together by a global healthcare company in July, 2015 at a beautiful rustic setting outside of Washington, DC  to contribute our respective experiences toward the establishment of a working definition of a "Patient Centricity" healthcare standard.  The group of 12 “patient leaders” brought together by a global healthcare company in July, 2015 at a beautiful rustic setting outside […]

My IBD British Brethren in London

Dear London-based IBDers:

       I will be staying in a downtown London hotel from June 7th to June 10th and if you are interested in being interviewed for a Documentary my non-profit is producing on raising global awareness of the potential severity and pervasiveness of Crohn’s Disease and Ulcerative Colitis, I would very much like to make your acquaintance and I encourage you to contact me.  My Twitter Handle is […]

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