This picture is of me presenting the logic behind my formation of the 501 (c)(3) Charity, “Crohn’s Disease Warrior Patrol” [CDWP], at the recent 2015 “Doctors 2.0 & You” in Paris, France. More specifically, after reading seemingly repetitive healthcare social media (hcsm) posts by frustrated, scared or depressed Crohn’s Disease and Ulcerative Colitis patients, I thought Inflammatory Bowel Disease (IBD) patients should utilize the various hcsm platforms TO HELP EACH OTHER.
Due to the autoimmune and incurable realities of Crohn’s and Ulcerative Colitis, even the most compassionate and dedicated of healthcare professionals can only do so much. With so many variables contributing to the broad spectrum of an IBD, an almost personalized version of the disease seems to affect different patients. But thanks to the technology-powered hcsm “grassroots movement,” Crohn’s Disease patients with the oddest symptoms or strangest flare-up triggers, for example, can commiserate with similarly peculiar Crohn’s patients from all over the world.
The CDWP tries to MATCH these patients with one another based on a variety of commonalities so that: “Patients helping other Crohn’s patients, is often the best medicine.” This is primarily conducted at the CDWP website but the CDWP has become a mindset for patients to cling to when all the world of medicine has to offer is a kind doctor, an understanding nurse, biologics, prednisone and painkillers. Indeed, “Patients helping other Crohn’s Disease patients, is often the best medicine.”
To sign up to be a CDWP “Warrior” who occasionally volunteers to make a phone call, initiates a Skype session with the family of a petrified child who’s not responding to the most potent of medications or visits a stressed-out hospitalized Crohn’s Disease or Ulcerative Colitis patient simply to let him or her know that we are in this together, please fill out the Veteran Patient Signup Form here on the CDWP website. To simply show camaraderie for your IBD brethren, you should also sign up to be a CDWP “Warrior” or “Veteran Patient” because, after all, it’s the required mindset to shine despite the darkness perpetrated by the potentially pervasive effects of Crohn’s Disease, Ulcerative Colitis and all their complications, peripheral manifestations and drug side effects.