A few weeks ago, I had the good fortune of being awarded a “Travel Scholarship” from the Society for Participatory Medicine and other generous sponsors to attend the “Partnership with Patients Summit” in Kansas City, Missouri (Friday, September 21, 2012 through Sunday, September 23, 2012).  Mere words can’t fully describe the inspirational experience of meeting similarly-minded people who are so passionate and dedicated toward empowering patients so that their healthcare experiences are humane, effective and affordable. Ergo, the six (6) SHORT Video Interviews below.  The Attendees included chronic patients/advocates like me, various specialty doctors, pharmaceutical executives, healthcare delivery system representatives, healthcare news reporters and social media experts adept at helping patients and providers communicate with one another.

The Summit also focused on helping Advocates become polished professional speakers so that they could reach more people with their message and get paid a reasonable fee for doing so.  To that end, the generosity displayed by experienced Speakers like Regina Holliday (also the Organizer of the Summit) and “e-Patient Dave” deBronkart was extraordinary.

Rather than write a long Blog post about all that I learned at the Summit and the very kind “Twitter people” it provided the opportunity for me to finally met, I conducted the Six (6) SHORT (i.e. 5-7 minutes) Video Interviews pasted below with folks whom I thought were representative samples of the overall Summit experience.  I wish I could have interviewed many more people but it was difficult to keep up with the fast pace of the Summit and also try to document it all on Video.  Thus, I recorded a few Interviews in-between sessions and I think by watching them you will get an accurate “feel” for the Summit experience.

I hope you take the time, whenever you have the time, to watch all, or some, of the Videos because the “Partnership with Patients Summit” was truly a collection of passionate people uniquely dedicated to improving the “patient experience.”  As a patient, I am thankful for those efforts, and as an advocate, I learned a great deal about reaching more people with my message.

Interview with Evelyn V. McKnight, AuD:  Below is a 5-minute Interview with Evelyn V. McKnight who formed the HONOReform Foundation after being infected with Hepatitis C while undergoing chemotherapy for stage III Breast Cancer in 2000 because her oncology nurse commonly reused syringes to access a multi-dose container of saline while flushing several patients’ IV ports.

Interview with Licensed Psychologist Dr. Ann Becker-Schutte: As a patient with a chronic disease for almost 30 years (i.e., Crohn’s Disease), I’ve rarely come across a Psychologist who can compassionately relate to the daily challenges I face.  However, I was fortunate to meet such a rare doctor when I became acquainted with Dr. Ann Becker-Schutte at the Summit.  Dr. Becker-Schutte is also a patient with a chronic disease (namely, Polycystic Ovary Syndrome) from which she almost died so she also has a unique perspective about “End of Life” issues. Dr. Becker-Schutte represents the other similarly genuinely dedicated providers I met at the Summit.

Interview with the ultimate e-Patient “Facilitator,” Lisa Fields: Below is a 6-minute Interview with one of the most prolific e-Patient “Facilitators,” Lisa Fields.  Besides being so pleasantly surprised to meet her in-person after 18 months of being the recipient of her Twitter “wisdom,” I was able to get Lisa to share some of her “secrets to success” regarding Twitter, Social Media, Public Speaking, PowerPoint and Ignite Speeches.


Interview with Olga Pierce, Reporter, PRO PUBLICA, an Online News Organization: “Journalism in the Public Interest” is the tagline for PRO PUBLICA.  With respect to Healthcare stories, PRO PUBLICA “bridges the gap” between Policy and Patient through a business model of Collaboration by which they share their stories with such prominent News Outlets as “Frontline,” NPR and USA Today.  Olga was kind enough to talk with me about her role as a Healthcare News Reporter in this process.

5 Minutes w/ Patient Advocate Extraordinaire, Regina Holliday: Regina is a highly regarded Patient Advocate and, as I was to learn, she employs very creative methods to help improve the “healthcare experience” including her artistic creation of, and contributions to, “The Walking Gallery.”  In this 5-minute Interview, Regina explains the specific objectives of the “Partnership with Patients,” we discuss how “The Walking Gallery” got started and she shares valuable information about getting started as a Paid Healthcare Speaker.

Family Practice Physician with a “Neu” Business Model: In this 6-minute Interview, I chat with Dr. W. Ryan Neuhofel (“Dr. Neu”) about the innovative new Business Model he uses for his Family Medicine Practice in Lawrence, Kansas.  He doesn’t take ANY health insurance but charges his patients a nominal “Membership Fee” ($10 – $20) and then simply bills for his time in 15-minute increments.  He also utilizes a great deal of technology and Health Care Social Media so that his patients can literally have 24/7 “continuity of care.” The combination of his intelligence, passion, logic and ingenuity attributes seem to make for an excellent Family Physician.