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Secondary Erythromelalgia diagnosis journey

rh-3 October 5, 2016 – “Secondary” Erythromelalgia or EM makes my hands and fingers so red that they BURN like Frostbite. EM is also referred to as “The Man on Fire Syndrome” because it literally feels as if your hands and fingers are on FIRE. It is extremely RARE and INCURABLE – at least by traditional means. Lovely.

October 7, 2016 – I have not been […]

abcs of IBD, Crohn’s & Colitis

IBD = Inflammatory Bowel Disease of which Crohn's Disease and Ulcerative Colitis are the most common. IBD = Inflammatory Bowel Disease of which Crohn’s Disease and Ulcerative Colitis are the most common.

      In light of it being Inflammatory Bowel Disease (#IBD) Awareness Week, below are some quotes/comments I’ve made over the years and some I’ve come across from friends, patients, IBD parents and […]

When Doctors disappear, Crohn’s Disease Patients ONLY have each other

The grim reality for Crohn's Disease & Ulcerative Colitis patients. The grim reality for Crohn’s Disease & Ulcerative Colitis patients, especially on weekends and holidays.

     Another weekend went just went by during which I encountered a very experienced and intelligent patient with Crohn’s Disease posing the following question to a well-trafficked Inflammatory Bowel Disease (IBD)-dedicated “Group” within a health care social media platform: […]

“Top-down” v “Bottom-up” Inflammatory Bowel Disease Treatments

This is Video 4 of 8 from my September 15, 2014 interview w/ Dr. Mark L. Chapman and focuses on the current contrasting styles of treating Inflammatory Bowel Diseases, i.e., “Top-down” v. “Bottom-up.”  Dr. Chapman also explains how he most effectively interacts with Crohn’s Disease and Ulcerative Colitis patients.

© 2014 CDWP  /  Copyright 2014  /  CDWP  All Rights Reserved

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Crohn’s Disease & IBD – Interview w/ an Expert

USE Chapman Blog Pic July 9 2014

Chronic patients must adapt to different doctors

As a 30-year Crohn’s Disease patient, I’ve met every conceivable type of physician and encountered them on probably their (and my) best and worst days.  With such a complex and seemingly “personalized” disease, I’ve learned there’s rarely a doctor-patient “comfort zone” such […]

My 1984-1985 “Diagnostic Journey” to Crohn’s Disease

Crohns March 24 2014

 

 

 

 

 

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Due to various painful ramifications of my recent successful Hip Replacement Surgery, “I didn’t have time to write a short letter, so I wrote a long one instead.”  Mark Twain 

Mind, Body & Spirit vs. Damn the Torpedoes

In my […]

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